“Getting Personal: How Your Genes are Shaping the Future of Healthcare” with the Jesup and The Jackson Laboratory

This series is part of “Primary Source” an annual collaboration between the Jesup Memorial Library and JAX featuring a series of programs about genetics. Previous series in this collaboration include “Genetic Stories: A Film and Discussion Series” in 2016, “Genetic Tails: Discover Your Dog’s Ancestry” in 2017 and “You: A Novel Gene Story” in 2018.

Thursday, June 13 at 7 p.m.
“Preserving the Future: How Does Cancer Treatment Affect Fertility?” with Dr. Ewelina Bolcun-Filas, Ph.D., Assistant Professor at The Jackson Laboratory
For many women, cancer treatment is complicated by the potential negative impact on their fertility. How can we help women who are facing this challenge? Join scientist and researcher Ewelina Bolcun-Filas for an engaging and interactive discussion on research aiming to make the decision between cancer treatments or fertility a thing of the past.

Tuesday, July 23 at 7 p.m. 
“Can Biotechnology Be Ethical: The CRISPR Conundrum” with Dr. Debra Matthews, Johns Hopkins Berman Institute of Bioethics
What are the ethical dilemmas we face as a society and what questions must be answered with the dawn of genome editing in humans (often referred to as “CRISPR”)? Join bioethicist Debra Mathews for a presentation and discussion on the latest, dramatic changes in genetics research, how research and healthcare communities are utilizing these technologies and what cultural shift is needed to respond to the ethical questions that are being asked.

Monday, August 12 at 7 p.m. 
“Making Genetics Part of Everyday Medicine” with Dr. Ada Hamosh, M.D., M.P.H. Johns Hopkins School of Medicine
What if you had the answer inside of you to why you were suffering from a disease? We are living in a time when genetics can tell us more about our health, but few physicians know how to accurately use genetic data for diagnosis and treatment.  Join pediatrician and researcher Ada Hamosh as she talks about the ethical, legal and social issues involved in integrating genetic diagnosis with treatment of cystic fibrosis — a disease affecting more than 70,000 people worldwide.

Tuesday, September 17 at 7 p.m. 
“A Model for Discovering Cures for Rare Diseases” with Dr. Greg Cox, Ph.D., Associate Professor at The Jackson Laboratory
What can you achieve by researching a wide array of rare and orphan diseases? Answers that can be used to treat multiple diseases for many more patients. Join Greg Cox as he discusses his impactful work on understanding the genetics behind muscular dystrophies and motor neuron diseases such as spinal muscular atrophy and Duchenne’s muscular dystrophy. Learn about why mouse models are critical to his research and how they are equally susceptible to the same devastating diseases.

Tuesday, October 8 at 7 p.m. 
“Gene Therapy and JAX’s Precision Genetics Center” with Dr. Rob Burgess, Professor at The Jackson Laboratory
Have you ever wondered how our brains are wired to send instructions reaching distant parts of the body? Join Rob Burgess as he discusses how genetic mutations can disrupt those important connections between our brains and body and how gene therapy could be harnessed to fix those mutations. Come learn what “precision genetics” is and why it’s important for the future of healthcare.